KNOW SOMEONE WITH IMPERFORATE ANUS?

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SHE WRITES:

 
It’s been almost 4 months since my last post so allow me to give you an update… I already gave birth to a very pretty baby girl and we call her “Meimei” which mean little sister in Chinese. Everything is well except that she has imperforate anus. As wikipedia puts it:
“An imperforate anus or anal atresia is a birth defect in which the rectum is malformed. Its cause is unknown.”
Right now Meimei has colostomy – considered as the first operation. The second operation that will take place sometime in October will be for the “making” of the rectum and the third operation will be the closure of the colostomy after about another 4-6 months. For the duration of about 1 year and 6 months, we (EJ, Meimei and I) will stay here in the Philippines while my husband stays in China (but he’ll be coming here from time to time).
I never knew that such a birth defect existed until this happened to me… how about you?
Do you know someone – a relative or a friend – whose daughter or son had / has imperforate anus. Do share their story…
A. Yes, and here’s their story…
B. No, it’s the first time I heard about it
C. Others (pls. specify)
YOU WRITE:
A. Yes, and here’s their story…
B. No, it’s the first time I heard about it
C. Others (pls. specify)

About MeiliLo

I am a daughter, a sister, a wife, a mother, a teacher and a friend.I have needs as well as wants, dreams as well as frustrations..I am simply ME =) but most importantly, I am an individual who believes in the goodness of my creator no matter what..
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45 Responses to KNOW SOMEONE WITH IMPERFORATE ANUS?

  1. cw2smom says:

    Your new daughter is beautiful!! Congratulations! I personally know people with a colostomy. but not as a result of a birth defect. It sounds like you all are well on the way to a fully healthy daughter with the treatment plan you’ve got! May the future bring you everything you want in life as a family! Health and happiness! Lisa

  2. Pinay Mommy says:

    B. No, it’s the first time I heard about it.

    Para akong estyudante nito. Hehehe… Now ko lang na know such case. Anyway, I am hoping all things will be OK for you and your baby. Praying that her operation will be successful.

    I was also glad to meet you last Saturday. Looking forward for more blogger’s meet-ups with you guys.

  3. Brenda Susan says:

    Oh I'm so sorry for the pain this all must be causing you & your family! I'll be praying for you as she needs to go through the surgeries. Blessings on you!

  4. Gladita says:

    A. I know of such a case but not to a person. It happened to our piglet and it broke my heart. I feel sad for your little girl that she has to go through several operations at such a tender age. I pray that everything will be ok and she’ll grow up to be a beautiful and healthy girl.

  5. Claudia's thoughts says:

    What a beautiful daughter. I did hear of imperforated anus before, when I did my pediatric rotation in Nursing School. Usually it is found when someone goes to take the babies temperature.

    I am willing to bet you were so happy you had that baby in your native country. It sounds like a good surgical plan and things will work out well.

    I will keep you all in my prayers.

  6. meili_lo says:

    THANK YOU all so much…
    and yes I’m glad we’re here in Bacolod, my hometown. family and friends are here and they’ve been very supportive.

  7. marriage markers says:

    i have heard of it before but not to family. this is the first time. it was so surreal for me. it is different when you just read about it and from when it is happening to someone so close.

  8. SSQuo says:

    MeiMei is precious :) so beautiful.

    I am happy that you are back, and I am sure being away from hubby must be hard. Sorry to hear about baby girls condition, I know it must be hard to see her go through these procedures at such a young age, but think of this way, once all this is done, she will be perfect and she wont even rememeber this a couple of years hence.

    Stay well :) and welcome back.

  9. swmpgrly says:

    she is beautiful.
    thankfully that is something medicine can take care of.
    I wish your daughter a fast recovery.

  10. praning5254 says:

    Yes, I already heard a lot of cases like that because in my profession, a Radiologic Technologist, adults, children and even new borns ae brought to our department, the radiology/x-ray deparment for the x-ray of their abdomen to make sure hat the colostomy is still in place.

    I wish your daughter will be well very soon.

  11. Hey, nice post, really well written. You should post more about this.

  12. tessa says:

    A. Yes, DEFINITELY, here’s my story

    my daughter robyn was born with imperforate anus. her colostomy was created within 24 hours of birth. had the psarp at 7 months, then colostomy closure at 9 months. now she is one year and seven months old and is doing extremely well.

    along with clarisse, mother to tomas (born with hirschsprung’s diease), we are putting up a support group of parents and family members of children affected by anorectal malformation.

    please take a minute to visit the support group page on my blog:
    http://iamshallow.wordpress.com/advocacy-colorectal-parents/

    and our group:
    http://health.groups.yahoo.com/group/colorectal_parents_philippines/

    or you can email me: dasein.tessa@yahoo.com

    we would be very happy to keep in touch with you!

  13. tessa says:

    A. Yes, DEFINITELY, here’s my story

    my daughter robyn was born with imperforate anus. her colostomy was created within 24 hours of birth. had the psarp at 7 months, then colostomy closure at 9 months. now she is one year and seven months old and is doing extremely well.

    along with clarisse, mother to tomas (born with hirschsprung’s diease), we are putting up a support group of parents and family members of children affected by anorectal malformation.

    please take a minute to visit the support group page on my blog:
    http://iamshallow.wordpress.com/advocacy-colorectal-parents/

    and our group: http://health.groups.yahoo.com/group/colorectal_parents_philippines/

    or email me: dasein.tessa@yahoo.com

    we’d be very happy to keep in touch with you!

  14. AudreyRose says:

    B. No, it’s the first time I heard about it

    Car, she’s so beautiful!!! Congrats and I’ll be praying for a successful operations on meimei and also to give you and your family strength to overcome this.

  15. ralph says:

    i do not know anyone with an imperforate anus but i saw a video in youtube many months ago about a baby who has trisomy 18 / edward’s syndrome. it’s really a sad video but it made me realize life is a gift indeed.. each day of our lives is a miracle from God.. i’d like to share to you this video.. it’s very inspirational ..

    http://www.youtube.com/watch?v=th6Njr-qkq0

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  20. Angelica says:

    A. Yes, and here’s the story.

    My son has impeforate anus too. I wasn’t expecting of it. I was so surpised when the doctor told me about it, at the time that I gave birth. I have so many questions in my mind like I am a born again christian, why me? I took complete vitamins with complete prenatal check up but why me? and many many more questions. But, I was wrong when I questioned God. I realized that God has a purpose in everything. My baby is 7 months old now, he has a colostomy. And he is scheduled for his psarp this October 23rd of 2009 at pgh. I ask for everyone’s prayer for his successful operation and also for financial blessings for his operation. My baby’s name is Noah Jeremy Taguiam. Thank you and God bless.

  21. Angelica says:

    A. Yes, and here’s the story.

    My son has imperforate anus too. I wasn’t expecting of it. I was so surprised when the doctor told me about it, at the time that I gave birth. I have so many questions in my mind like I am a born again christian, why me? I took complete vitamins with complete prenatal check up but why me? and many many more questions. But, I was wrong when I questioned God. I realized that God has a purpose in everything. My baby is 7 months old now, he has a colostomy. And he is scheduled for his psarp this October 23rd of 2009 at pgh. I ask for everyone’s prayer for his successful operation and also for financial blessings for his operation. My baby’s name is Noah Jeremy Taguiam. Thank you and God bless.

    angel_21simon@yahoo.com.ph for more informations.

  22. angel says:

    A. Yes, DEFINITELY, here’s my story

    Hi! I am Angelica. baby Noah’s mom. I was not expecting a child with an imperforate anus. I don’t even know about it. But when I gave birth, the doctor told me that my baby has imperforate anus. I really can’t believe it. It was so difficult to handle at first, so I had a lot of questions such as why me? I am a born again christian, I took complete vitamins and prenatal checked ups but why me? I even offered my baby to God, because I don’t want to see my baby in pain. But I was wrong when I questioned Him. I know He has a purpose because in everything there’s a purpose, we just have to trust our Creator. My baby is now 7 months old and he is scheduled for a psarp on oct. 23, 2009 at pgh. So please I ask for your help to pray for my baby’s successful operation and pray also for financial blessings to finance my baby’s medical expenses. For more details e-mail me at angel_21simon@yahoo.com.ph Thank you nad Godbless.

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  26. Nchym says:

    A. Yes, DEFINITELY, here’s my story

    My son, Tyrone Jay born with imperforate anus. He is now 3 years old. We already preparing him for his final operation, hopefully this June 2010.

    Please pray for his successful operation.

  27. MeiliLo says:

    to all:

    kindly visit http://www.colorkiddos.com for support to kids with imperforate anus.

    thank you!

  28. Kimberly says:

    A. Yes, DEFINITELY, here’s my story

    my step daughter was born almost 14 years ago with an imperforate anus and she has been lucky enough to ‘grow’ out of this disability and is living a normal life as a teenage girl with absolutely no other problems except for an ugly scar from where the tube was taken out of from the bag she worn on her side for many years.

    good luck to you and keep thinking positive, if Alyssa can out grow this then there is no reason why your daughter cant.

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  30. adam taylor says:

    Yes. I have it. Your daughter looks beautiful and I will pray for her.
    I am 31 years old and thouugh many surgeries have helped I struggle with it today. I have been searching for years for a support group for this illness. If anyone knows of one please let me know.

  31. Laurel says:

    I am a 26 year old young woman with imperforate anus. I didn’t know much about this condition until I recently decided to do research. I had an opportunity to share my testimony on living with this condition with a group of ladies at our Women’s Ministry at church. It has not always been easy, but by the grace and mercy of God, he has brought me to a place of acceptance of who I am with this condition. In addition to this condition, I also have several others including, poor kidney function, constant UTI’S, anemia, and others. It has been a 26 year long struggle for me. When I was born, I too had to have a stoma built and had to have a colostomy bag. Now, I have been able learned how to cope with this condition and not allow it to stop me from being everything I was created to be and I am proud to say that I AM A SURVIVOR! I would love to continue to talk to people with this story or similar stories. Be blessed!

  32. MeiliLo says:

    thanks so much Laurel… God’s grace will bring you to more places and bless more people with your story :)
    keep in touch!

  33. MeiliLo says:

    thank you Adam… do keep in touch I’ll post more stories in the coming days :) God Bless.

  34. Ping Bowman says:

    I have a nephew born with Imperforate anus and ,he lives in Malaysia. I am looking for a support group, preferably one that can offer support in Chinese but if there is not one available, his father’s level of English will enable him to understand. He is looking for information to help him to understand the different stages of surgery to full recovery. Please can you email me?
    Thank you. Ping

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  36. MeiliLo says:

    hi ping.
    i sent you an email.
    we have a website that may help. please visit:
    http://www.colorkiddos.net

    hope to hear from you!
    tnx.

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  38. Alicia says:

    Hi MeiliLo,

    My daughter was born on July of this year and also has imperforate anus. She is now a little over 4 months old with a colostomy done and we are waiting for her repair surgery in January. Apparently she has what’s called vestibular fistula. I’m praying everyday that the surgery will go smoothly and she will be healthy soon.

    How is your daughter doing now?

  39. MeiliLo says:

    Hi Alicia,
    thank you for letting me know… my daughter is doing well.

    I’d like to invite you to visit our website:
    http://www.colorkiddos.net
    FB page: http://www.facebook.com/ColorKiddos
    or drop me an email here:
    colorkiddos@yahoo.com

    I’d like to hear your story… thanks much!!!

  40. Debbie DeLano says:

    I came across this while looking up some more info regarding the imperforate anus defect. My son was born with it Oct 5, 2011 and had to have surgery. Luckily, he already had the fissure that was required for the start and didn’t need any form of colostomy. I had to dilate him 2 times a day EVERY day. It was the hardest thing that I have ever had to do and never want to go through it again (nor would I want any other parent to go through it). I just recently a couple of months ago (around his first birthday) got the ok that he no longer needs to be dilated and that the pediatric surgeon wants to see us back in a year to see how he’s doing.

  41. MeiliLo says:

    Thanks so much for sharing! Should you need some more information, here’s our ColorKiddos website that’s dedicated to help colorectal children and their families:

    http://colorkiddos.net/

  42. Shuba says:

    Hi, my son was born with Imperorated Anus in April 2010. Completed all 3 surgeries by August 2010. He is 3 years now. Glad to found this forum. My email add is ravirubs@yahoo.com. Thx

  43. Seneca says:

    Hi, I am a 32 year old man with imperforate anus. I would just like to say that growing up my parents did not understand what was wrong with me . Therefore it caused a lot of strain and stress on our relationship. I am still dealing with this and my parents and i still dont get along. I think that as long as you make an effort to learn as much as you can for your daughter about this and help her to understand that she is a beautiful person and she is not alone . Be there for her if and when she needs you and give her even more love than you can possibly give. I believe that your little girl will be fine. You are ALL in my prayers with love and thanks for allowing me to speak.

  44. beautifulblessing says:

    I know someone in my family with imperforated anus. They have alot of struggles with constipation. went thru the same steps at birth with the colostomy then the pull down surgery.

  45. corey reynolds says:

    Hi I’m 27 years old I was born with imperforated anus I promise u everything
    Will work out your beautiful girl most likely. will have to have a high fiber diet and stool softeners. I have turned our grate so no worries find me on Facebook Corey
    Reynolds Bangor Maine. God bless

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